Data management
Theme Leaders
Description
Timely collection and sharing of data and information is critical to a rapid research response and will translate into better health for Australians during infectious diseases emergencies.
Effective health informatics and data management will help to ensure ethical and appropriate sharing of information among clinicians, health services, researchers and government health units.
Interpreting data will help effectively communication the applications of lessons learned to improve health policy.
This platform will provide skills and technology to understand:
- which information and research results should be shared and who should receive it
- how the information and research results will be shared
- how the information will assist the emergency response
- what emergency response measures are needed to decrease transmission
- which populations need targeted emergency response measures
- when emergency response measures should start and stop.
Related Projects
- ‘First Few X’ (FFX) research project to enhance the public health response to COVID-19 in Australia
- CRISPER: COVID-19 Real-time Information System for Preparedness and Epidemic Response
- Frequently Asked Questions – ‘First Few X’ (FFX) project to enhance the public health response to COVID-19 in Australia
- Influenza sero-surveillance at the animal-human interface: a feasibility study in high-risk groups
- Short PeRiod IncideNce sTudy of Severe Acute Respiratory Infection (SPRINT-SARI): research preparedness for pandemics
- Specimen collection protocols to accompany FF100 enhanced data collection studies
Related Publications
- Effectiveness evaluation of digital contact tracing for COVID-19 in New South Wales, Australia
- Priorities in Biobanking Research: A Report on the 2021 ISBER Round Table
- Development of the COVID-19 Real-Time Information System for Preparedness and Epidemic Response (CRISPER), Australia
- COVID‐19 Real‐time Information System for Preparedness and Epidemic Response (CRISPER)
- How do data bolster pandemic preparedness and response? How do we improve data and systems to be better prepared?
- RDA COVID-19 Working Group recommendations and guidelines on data sharing
- Communicable disease surveillance ethics in the age of big data and new technology
- Clinical research networks and assessing pandemic severity
- Stakeholder Consultation Report – Australian Partnership for Preparedness Research on Infectious Disease Emergencies: NHMRC Centre for Research Excellence
- Is Australia prepared for the next pandemic?
- Developing research priorities for Australia’s response to infectious disease emergencies